It's hard to believe that we are five years since this happened. 5 years since your precious legs and fingers were taken from us. Yes it marks 5 years since you took that major step to recovering from the horrific Meningitis but it is also five long years of struggles and future problems. Two corrective procedures, 10 pairs of prosthetics-2 of which didn't work, a wheelchair, 2 walking frames, leg braces, physio, applications and struggles to get a downstairs bedroom and wetroom built for you (plans to start on 6th March if this weather ever gets better!!!) Fundraisers, leg casts, missing teeth as only 11 have grown-3 of which have already dropped out, intensive daily massage to help your scars heal soft to prevent your skin from ripping/hurting as you grow, bone growth plates damaged resulting in your legs only growing 30% from the hip and no growth at all from the knees down, due to growth problems below the knees your legs struggle to support your weight so buckle in at the knees, annual hearing tests, additional illnesses due to lower immune system (chicken pox, scarlet fever, hand foot and mouth, infections in your legs just to name a few).
This is a snippet of what life has been like for Louie in the last 5 years, and we know there is a lot more to come. The next thing being on the 13th April where we will attend a meeting at Alder Hey to discuss 4 more operations to try and lengthen Louie's legs as they have not grown in the last 2 years.
Don't get me wrong, Louie IS a happy little boy and as his Mother I try my hardest to let him experience everything possible in life but the one thing I want to gain from sharing this with you all is that Meningitis not only kills but it ruins the life of survivors too. Vaccines should be used and should be available to everyone!!! But not only use the Vaccines also stay vigilant, know what the symptoms are and get checked out if you are concerned. Everything listed above that Louie has had to go through and more is after being treated within 30 Mins of the first spots appearing!!! Please share and let others know how deadly this disease is xxx
Words and permission to share given by Louie's mum Julie Green.